Facial Nerve Palsy - supporting people living with facial paralysis


Facial Nerve Palsy Information & Support

Important note 

I am no longer taking direct enquiries via this website and it is not being updated with the latest information so please always consult a medical professional, this website is not a substitute for medical advice.

To connect with others affected by facial palsy please join the Facebook group Courage to Smile (for anyone affected by facial palsy due to any cause). Alternatively if you had facial palsy in childhood you can request to join the Facebook group I was an FP Kid (only for people over the age of 13 who personally experienced facial palsy in childhood, not their family members, sorry!)

For regularly updated information about facial palsy please visit either Facial Palsy UK (in the UK) or the Facial Paralysis Foundation (in the US).

Thank you.

History of this website

For those people living with facial paralysis and their families, historically there has not been much information or support out there. It is a rare condition with many different causes and there are still many unanswered questions as to why this happened, what caused it and what can be done to improve the situation?

This website was a group effort from fellow facial palsy sufferers and our goal was to provide an excellent resource bringing together all of the information we have learned.  However you ended up with facial palsy, we will more than likely know someone who has been through what you are going through. 

Many of us grew up living with facial palsy and not having the benefit of the internet back then, it could get very lonely.  It is thankfully a rare thing to happen to a person and if we can just stop people feeling lonely and nothing else, then we will have done some good.

Some people wake up one day and see a different face in the mirror, their lives changed overnight with no warning.  With terrifying thoughts of what could it be, thoughts of stroke and brain tumour cause a wave of panic.  The resulting diagnosis is often Bell's Palsy and they are told it shouldn't be permanent, but the waiting and uncertainty is an extremely difficult time.  Other people face life-threatening brain tumours, acoustic neuromas, etc., and they struggle to overcome seemingly insurmountable hurdles and are then cruelly confronted by facial paralysis.  Some people experience severe head trauma perhaps through an automobile accident, and have to come to terms with losing their smile.  For those born with Moebius Syndrome, facial paralysis is just one part of a very complicated neurological disorder. 

The main thing to remember is that you are not alone and there is support out there. There is a wonderful community over at the Courage to Smile group on Facebook and there are also many cause specific groups on Facebook relating to Bell's palsy, Acoustic neuroma, Ramsay Hunt syndrome, for example.

The reason this website is no longer updated is because the owner now works full time for the British charity Facial Palsy UK and devotes all her efforts to that. You can still receive the same support from the charity as we tried to offer here in the early days before there was a charity. There is also the Facial Paralysis Foundation in the United States who are doing wonderful work. This website will remain as it is because there are some wonderful stories and great tips, but always remember to seek proper medical advice, this is not a substitute.

Thank you!