Facial Nerve Palsy - supporting people living with facial paralysis

 

Facial Nerve Palsy Information & Support

About this website

For those people living with facial paralysis and their families, there is not much information or support out there. It is a rare condition with many different causes and there are still many unanswered questions as to why this happened, what caused it and what can be done to improve the situation?

This website is a group effort from fellow facial palsy sufferers and our goal is to provide an excellent resource bringing together all of the information we have learned.  However you ended up with facial palsy, we will more than likely know someone who has been through what you are going through. 

Many of us grew up living with facial palsy and not having the benefit of the internet back then, it could get very lonely.  It is thankfully a rare thing to happen to a person and if we can just stop people feeling lonely and nothing else, then we will have done some good.

Some people wake up one day and see a different face in the mirror, their lives changed overnight with no warning.  With terrifying thoughts of what could it be, thoughts of stroke and brain tumour cause a wave of panic.  The resulting diagnosis is often Bell's Palsy and they are told it shouldn't be permanent, but the waiting and uncertainty is an extremely difficult time.  Other people face life-threatening brain tumours, acoustic neuromas, etc., and they struggle to overcome seemingly insurmountable hurdles and are then cruelly confronted by facial paralysis.  Some people experience severe head trauma perhaps through an automobile accident, and have to come to terms with losing their smile.  For those born with Moebius Syndrome, facial paralysis is just one part of a very complicated neurological disorder.